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Responses > Narcolepsy Service

Freedom of Information request Narcolepsy Service

Response published: 17 September 2025
NHS

FOI Request

Freedom of Information Request – Narcolepsy Services Please provide the following information regarding narcolepsy services provided or commissioned by your organisation: 1. Do you provide or commission narcolepsy services? • If yes, please provide: • The name and location of the service • The current Referral to Treatment Time (RTT) • The number of patients seen by the service during the most recent full financial year (to April 2025) • The number of patients the service is contracted to see • The key performance indicators (KPIs) or outcome measures are used to monitor the service. Additionally, how the services performed against the set KPIs (outcome measures) for the latest available period of time. • Whether the service is commissioned through a block contract (Yes/No). • If not, please specify: • The organisation or provider to which patients with suspected or confirmed narcolepsy are referred to.

FOI Response

Freedom of Information Request – Ref: GHC-05082025-406551

Thank you for your recent Freedom of Information request. Please find our response below.

You asked:

1. Do you provide or commission narcolepsy services?

Our Response:

No

You asked:

If not, please specify: • The organisation or provider to which patients with suspected or confirmed narcolepsy are referred to.

Our Response:

Gloucestershire Hospitals NHS Foundation Trust at ghn-tr.foi@nhs.net.

Next steps:

Should you have any queries in relation to our response, please do not hesitate to contact us. If you are unhappy with the response you have received in relation to your request and wish to ask us to review our response, you should write to:

Louise Moss
Head of Legal Services / Associate Director of Corporate Governance
c/o Gloucestershire Health and Care NHS Foundation Trust
Edward Jenner Court
1010 Pioneer Avenue
Gloucester Business Park
Brockworth, GL3 4AW
E-mail: louise.moss@ghc.nhs.uk

If you are not content with the outcome of any review, you may apply directly to the Information Commissioner’s Office (ICO) for further advice/guidance. Generally, the ICO will not consider your case unless you have exhausted your enquiries with the Trust which should include considering the use of the Trust’s formal complaints procedure. The ICO can be contacted at: The Information Commissioner’s Office, Wycliffe House, Water Lane, Wilmslow, Cheshire SK9 5AF.