Dear Gloucestershire Health and Care NHS Foundation Trust,
I would appreciate your input on the following questions
1. Service Context & Care Pathway
• Does your Trust diagnose and/or treat patients with Chronic Inflammatory Demyelinating Polyneuropathy (CIDP)?
Our response:
You asked:
• If yes, which clinical departments or specialties are responsible for CIDP diagnosis and management?
(e.g., Neurology, Neurophysiology, Immunology, Specialist Neuromuscular Services)
• Does your Trust operate a specialist neuromuscular or neuroimmunology service?
If so, please provide a brief description (e.g., staffing, catchment area, referral pathways).
2. CIDP Patient Numbers
• How many patients with a confirmed diagnosis of CIDP are currently recorded within your Trust?
Please provide the most recent 12 month period available.
• If available, please provide the number of newly diagnosed CIDP patients in the same period.
• If diagnosis data are coded, please confirm which coding system is used (e.g., ICD 10, SNOMED CT).
3. CIDP Treatment With IVIg
• How many CIDP patients received intravenous immunoglobulin (IVIg) at your Trust in the most recent 12 month period?
• Please provide the number of IVIg treatment episodes administered to CIDP patients in that period.
• If available, please provide the total volume (grams) of IVIg used for CIDP during the same period.
• How many CIDP patients received IVIg vs SCIg in the most recent 12‑month period?
• If SCIg is used, please provide the number of treatment episodes and total grams administered.
• If available, please provide typical dosing regimens used for CIDP (e.g., grams/kg and treatment intervals).
• If recorded, please provide the average number of IVIg cycles per CIDP patient per year.
4. Operational & Capacity Information
• Does your Trust have a formal protocol or clinical guideline for the diagnosis and management of CIDP?
If yes, please provide a copy or link.
• Does your Trust operate a waiting list for IVIg treatment?
If yes, please provide the current number of patients waiting and the average waiting time.
• Does your Trust participate in any regional or national neuromuscular networks relevant to CIDP?
• Does your Trust record adverse events or complications associated with IVIg administration in CIDP patients? If yes, please provide any available summary data.
5. Commissioning, Governance & Funding
• Which commissioning arrangements apply to CIDP treatment at your Trust?
(e.g., specialised commissioning, local ICB commissioning)
• Does your Trust use a prior approval or funding request process for IVIg in CIDP?
• Does your Trust participate in the National Immunoglobulin Database (NID)? If yes, do you routinely submit CIDP specific data?
Thank you in advance
Yours faithfully,

