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Responses > Haemophilia A and B and Von Willebrand Patients

Freedom of Information request Haemophilia A and B and Von Willebrand Patients

Response published: 6 February 2026

FOI Request

Hi FOI team for Gloucestershire Health and Care NHS Foundation Trust, Under the Freedom of Information (FOI) Act 2000 I would like to obtain the following information: In the last 3 months (October, November, December 2025), how many haemophilia A and B and von Willebrand patients were treated with the following coagulation factors in your trust and how much volume (IUs or mg) was used? Brand name Number of treated patients Volume used (IUs, mg) Hemlibra (non-inhibitor patients) Hemgenix Altuvoct Advate Adynovi Elocta Esperoct NovoEight ReFacto AF Nuwiq Hympavzi Idelvion Refixia Alprolix BeneFIX Replenine Rixubis Veyvondi Voncento Wilate Willfact Best wishes,

FOI Response

Freedom of Information Request – Ref: FOI 012-2026

Thank you for your recent Freedom of Information request. Please find our response below.

You asked:

In the last 3 months (October, November, December 2025), how many haemophilia A and B and von Willebrand patients were treated with the following coagulation factors in your trust and how much volume (IUs or mg) was used?

Hemlibra (non-inhibitor patients)
Hemgenix
Altuvoct
Advate
Adynovi
Elocta
Esperoct
NovoEight
ReFacto AF
Nuwiq
Hympavzi
Idelvion
Refixia
Alprolix
BeneFIX
Replenine
Rixubis
Veyvondi
Voncento
Wilate
Willfact

Our response:

The Trust does not treat patients with the above coagulation factors. Please re-direct your request to Gloucestershire Hospitals NHS Foundation Trust at ghn-tr.foi@nhs.net.

Next steps:

Should you have any queries in relation to our response, please do not hesitate to contact us. If you are unhappy with the response you have received in relation to your request and wish to ask us to review our response, you should write to:

Louise Moss
Head of Legal Services / Associate Director of Corporate Governance
c/o Gloucestershire Health and Care NHS Foundation Trust
Edward Jenner Court
1010 Pioneer Avenue
Gloucester Business Park
Brockworth, GL3 4AW
E-mail: louise.moss@ghc.nhs.uk

If you are not content with the outcome of any review, you may apply directly to the Information Commissioner’s Office (ICO) for further advice/guidance. Generally, the ICO will not consider your case unless you have exhausted your enquiries with the Trust which should include considering the use of the Trust’s formal complaints procedure. The ICO can be contacted at: The Information Commissioner’s Office, Wycliffe House, Water Lane, Wilmslow, Cheshire SK9 5AF.