Freedom of Information Request – Ref: FOI 004-2025
Thank you for your recent Freedom of Information request. Please find our response below.
You asked:
I’m an academic based at the SHARE Collaborative for Health Equity, within the Faculty of Medicine at Queen Mary University of London. My research focuses on infectious diseases and on community involvement in the research process and you can find out about me here https://eur01.safelinks.protection.outlook.com/?url=https%3A%2F%2Fshareresearch.org.uk%2F&data=05%7C02%7CFOI%40ghc.nhs.uk%7C31a3b66ea0de4b87b32108dd705eb182%7Cf8120e622f9442d0beb68143b2f833fb%7C0%7C1%7C638790274203519252%7CUnknown%7CTWFpbGZsb3d8eyJFbXB0eU1hcGkiOnRydWUsIlYiOiIwLjAuMDAwMCIsIlAiOiJXaW4zMiIsIkFOIjoiTWFpbCIsIldUIjoyfQ%3D%3D%7C80000%7C%7C%7C&sdata=KDFwuZmFNyaOgs4efvkDyMvG7Uod2Lb6NrFod0XxWCI%3D&reserved=0.
I am conducting an FOI-based study to explore the current state of community and/or patient public involvement and engagement (PPIE) within high-level agenda setting health research boards in NHS Trusts/Board in the UK.
May I please ask for the following information under the FOI act.
1. Does your NHS Trust/Board have an executive board where health research strategy for the hospital/s is set? e.g. a Research and Innovation Board or other relevant high-level board.
Our response:
We have a research Overview Committee who report to the executive board annually and provide regular updates
You asked:
2. If yes, is there a PPIE (patient public involvement engagement) representative on this board with the specific remit to provide insights into research agenda setting from the perspective of a patient with lived experience of health issues or as a member of the public/community? [I am not referring to the presence of a lay chair].
Our response:
No
You asked:
3. Is there a PPIE advisory structure (e.g. board, committee, panel) which provides PPIE insights to inform the work of the executive board? (not within individual study groups- I refer to high level feedback into your research strategy meetings).
Our response:
No
You asked:
4. If yes to question 2, 3, 4 or 5, please provide the most recent minutes/agenda with a list of members with designated roles/remits (not names).
Our response:
Not applicable
You asked:
5. Are PPIE representatives remunerated?
Our response:
Not applicable
You asked:
6. Do you require PPIE representatives to do any training? If yes, please specify e.g NIHR training or in house-training.
Our response:
Not applicable
You asked:
7. I realise that some of this information may already be available. However, I was unable to locate it. So, if it is, please provide me with a link to the data.
Our response:
Not applicable
Next steps:
Should you have any queries in relation to our response, please do not hesitate to contact us. If you are unhappy with the response you have received in relation to your request and wish to ask us to review our response, you should write to:
Louise Moss
Head of Legal Services / Associate Director of Corporate Governance
c/o Gloucestershire Health and Care NHS Foundation Trust
Edward Jenner Court
1010 Pioneer Avenue
Gloucester Business Park
Brockworth, GL3 4AW
E-mail: louise.moss@ghc.nhs.uk
If you are not content with the outcome of any review, you may apply directly to the Information Commissioner’s Office (ICO) for further advice/guidance. Generally, the ICO will not consider your case unless you have exhausted your enquiries with the Trust which should include considering the use of the Trust’s formal complaints procedure. The ICO can be contacted at: The Information Commissioner’s Office, Wycliffe House, Water Lane, Wilmslow, Cheshire SK9 5AF.