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Responses > CIDP, Neuropathy, and GBS Diagnoses (2015–Present)

Freedom of Information request CIDP, Neuropathy, and GBS Diagnoses (2015–Present)

Response published: 23 December 2025

FOI Request

FOI Request – CIDP, Neuropathy, and GBS Diagnoses (2015–Present) Dear FOI Team, I am writing to request information under the Freedom of Information Act 2000. Please provide the following data for the period January 2015 to the present, separated by calendar year: 1. The number of patients diagnosed with Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) 2. The number of patients diagnosed with Guillain-Barré Syndrome (GBS) 3. The number of patients diagnosed with neuropathy-related conditions, including sensory neuropathy, motor neuropathy, and autoimmune neuropathies For each condition, please indicate: - The total number of patients diagnosed per year - How many were treated as inpatients and how many as outpatients - If possible, please include data from inpatient admissions, outpatient referrals, and neurology department records. I do not require data broken down by age, gender, or vaccine status. Please treat this as a formal FOI request. I understand you are required to respond within 20 working days.

FOI Response

Freedom of Information Request – Ref: GHC-21122025-217963

Thank you for your recent Freedom of Information request. Please find our response below.

You asked:

1. The number of patients diagnosed with Chronic Inflammatory Demyelinating Polyneuropathy (CIDP)

2. The number of patients diagnosed with Guillain-Barré Syndrome (GBS)

3. The number of patients diagnosed with neuropathy-related conditions, including sensory neuropathy, motor neuropathy, and autoimmune neuropathies.

Our response:

The Trust does not provide the services mentioned in your request.  . Please re-direct your request to Gloucestershire Hospitals NHS Foundation Trust at ghn-tr.foi@nhs.net.

Next steps:

Should you have any queries in relation to our response, please do not hesitate to contact us. If you are unhappy with the response you have received in relation to your request and wish to ask us to review our response, you should write to:

Louise Moss
Head of Legal Services / Associate Director of Corporate Governance
c/o Gloucestershire Health and Care NHS Foundation Trust
Edward Jenner Court
1010 Pioneer Avenue
Gloucester Business Park
Brockworth, GL3 4AW
E-mail: louise.moss@ghc.nhs.uk

If you are not content with the outcome of any review, you may apply directly to the Information Commissioner’s Office (ICO) for further advice/guidance. Generally, the ICO will not consider your case unless you have exhausted your enquiries with the Trust which should include considering the use of the Trust’s formal complaints procedure. The ICO can be contacted at: The Information Commissioner’s Office, Wycliffe House, Water Lane, Wilmslow, Cheshire SK9 5AF.