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Freedom of Information request Blood Cancers

Response published: 7 January 2026
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FOI Request

Dear FOI officer I am currently a first year PhD student at Queen’s University Belfast, studying clinical trial participation rates for blood cancer throughout the UK. Under the Freedom of Information Act of 2000, I would like to request the following information for your healthcare trust during the period 1st Jan2015 to 31st December 2025: Annual number of patients diagnosed with blood cancers per year overall, and by subtype: Lymphomas (C81-86) Malignant immunoproliferative diseases (C88) Multiple myeloma and malignant plasma cell neoplasms (C90) Leukaemia (C91-C95) Unspecified malignant neoplasms of lymphoid, haematopoietic and related tissues (C96) The number of blood cancer clinical trials available, including active trials that are recruiting and trials that are not actively recruiting. Annual number of patients who were enrolled in interventional or observational clinical trials related to these blood cancers per year. The scientific title, clinical trial registration number, phase (I/II/III/IV/other), opening and closing recruitment dates, number recruited at this trust, and location of each trial related to blood cancer. The current number of dedicated research staff (e.g. research nurses, research practitioners, study coordinators etc.) assigned to haematological clinical trials. If available, annual counts of invitations/offers made to eligible patients to consider trial participation. Format: please provide data in a machine-readable format (e.g. excel or CSV) and return to me via email. If any part is held or cannot be provided, please explain why and provide aggregated alternatives. I am requesting aggregated counts and non-identifiable data only. Please withhold any information that would potentially identify individual patients and instead provide aggregated counts (by year, diagnosis category, and demographic bands) Please contact me if you need to clarify any details of my request. Many thanks for your assistance, Yours Sincerely,

FOI Response

Freedom of Information Request – Ref: GHC-07012026-899653

Thank you for your recent Freedom of Information request. Please find our response below.

You asked:

Annual number of patients diagnosed with blood cancers per year overall, and by subtype: Lymphomas (C81-86) Malignant immunoproliferative diseases (C88) Multiple myeloma and malignant plasma cell neoplasms (C90) Leukaemia (C91-C95) Unspecified malignant neoplasms of lymphoid, haematopoietic and related tissues (C96)

The number of blood cancer clinical trials available, including active trials that are recruiting and trials that are not actively recruiting.

Annual number of patients who were enrolled in interventional or observational clinical trials related to these blood cancers per year.

The scientific title, clinical trial registration number, phase (I/II/III/IV/other), opening and closing recruitment dates, number recruited at this trust, and location of each trial related to blood cancer.

The current number of dedicated research staff (e.g. research nurses, research practitioners, study coordinators etc.) assigned to haematological clinical trials.

Our response:

The Trust does not provide the service (diagnose patients for blood cancers) mentioned in your request. Please re-direct your request to Gloucestershire Hospitals NHS Foundation Trust at ghn-tr.foi@nhs.net.

Next steps:

Should you have any queries in relation to our response, please do not hesitate to contact us. If you are unhappy with the response you have received in relation to your request and wish to ask us to review our response, you should write to:

Louise Moss
Head of Legal Services / Associate Director of Corporate Governance
c/o Gloucestershire Health and Care NHS Foundation Trust
Edward Jenner Court
1010 Pioneer Avenue
Gloucester Business Park
Brockworth, GL3 4AW
E-mail: louise.moss@ghc.nhs.uk

If you are not content with the outcome of any review, you may apply directly to the Information Commissioner’s Office (ICO) for further advice/guidance. Generally, the ICO will not consider your case unless you have exhausted your enquiries with the Trust which should include considering the use of the Trust’s formal complaints procedure. The ICO can be contacted at: The Information Commissioner’s Office, Wycliffe House, Water Lane, Wilmslow, Cheshire SK9 5AF.