Freedom of Information Request – Ref: FOI 137-2026
Thank you for your recent Freedom of Information request. Please find our response below.
You asked:
1. The number of patients your Trust referred onwards with a suspected or confirmed diagnosis of transthyretin amyloidosis (ATTR).
If possible, please break this down by:
• Year
• Referring specialty (e.g. cardiology, neurology, nephrology)
Our response:
Zero, we do not have patients recorded with a suspected or confirmed diagnosis of ATTR.
You asked:
2. For the same period, please specify:
• The external centre(s) to which patients with suspected or confirmed ATTR amyloidosis were referred (e.g. National Amyloidosis Centre, regional amyloidosis hubs, tertiary cardiology centres).
Where available, please include:
• The number of patients referred to each centre per year.
Our response:
Not applicable.
Next steps:
Should you have any queries in relation to our response, please do not hesitate to contact us. If you are unhappy with the response you have received in relation to your request and wish to ask us to review our response, you should write to:
Louise Moss
Head of Legal Services / Associate Director of Corporate Governance
c/o Gloucestershire Health and Care NHS Foundation Trust
Edward Jenner Court
1010 Pioneer Avenue
Gloucester Business Park
Brockworth, GL3 4AW
E-mail: louise.moss@ghc.nhs.uk
If you are not content with the outcome of any review, you may apply directly to the Information Commissioner’s Office (ICO) for further advice/guidance. Generally, the ICO will not consider your case unless you have exhausted your enquiries with the Trust which should include considering the use of the Trust’s formal complaints procedure. The ICO can be contacted at: The Information Commissioner’s Office, Wycliffe House, Water Lane, Wilmslow, Cheshire SK9 5AF.