Gloucestershire Health and Care- NHS Trust logo
with you, for you
Responses > 186-2022

Freedom of Information request 186-2022

Response published: 7 July 2023

FOI Request

Under the freedom of information act please could you provide the following information in relation to the conditions or probably or suspected conditions in i-xiv. below? i. Pandas Paediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections. ii. PANS Paediatric Acute-onset Neuropsychiatric Syndrome. iii. Long COVID iv. immune mediated neuro behaviour conditions v. neuro psychiatric conditions vi. behavioural changes or altered behaviour vii. sudden onset tics viii. sudden onset ocd iv. sudden onset eating difficulties x. bodily distress disorder xi. autoimmune encephalitis with an idiopathic cause xii. idiopathic transverse myelitis xiii. immune dysregulation xiv. psychiatric disorder 1. Please can you provide any a. clinical guidance, b. policy, c. procedure d. diagnostic pathway e. treatment pathways f. management pathway g. the clinical classification ICD-11 code or the code which would have traditionally been used if there is an absence of code for each of the conditions i.-xiv. above in paediatric patients. 2a. Please could you also provide for each condition or probable/ suspected condition i.-xiv. above the number of paediatric patients presenting with these conditions for each year for the past 5 years? & b. how many were referred for treatment c. how many referrals rejected d. how many referrals were accepted e. how many patients were referred to another service outside of the trust. Please could this be provided in a table format? 3. Please could you provide me with any minutes of meetings which decided how patients are treated following the British Paediatric Neurology Association Consensus Statement dated April 2021 and details of any changes in how the trust treated or diagnosed patients following this statement along with details of who made the decision to implement any changes.

FOI Response

Thank you for your freedom of information request below. Unfortunately this does not relate to Gloucestershire Health & Care NHS Foundation Trust. Can we therefore suggest that you contact Gloucestershire Hospital NHS Foundation Trust who should be able to provide this information.
https://www.gloshospitals.nhs.uk/about-us/our-trust/freedom-information/
Yours sincerely,
Freedom of Information Officer
On behalf of Gloucestershire Health & Care NHS Foundation Trust
Edward Jenner Court, Gloucester Business Park, Brockworth, GL3 4AW