Responses

I wish to make a freedom of information request and would be grateful if you could provide the following information within 20 working days:

a) The number of staff employed at your Trust’s Sexual Assault Referral Centre (SARC) for the years 2010 – 2024.

b) The number of children aged under 18 years old who have been received support by your Trust’s SARC between the years 2010 – 2024 and, if possible, the number of these who are identified as having been victims of gang-based CSE.

c) The number of victims of CSE who received mental health support from your trust between 2018 and 2024.

d) The number of children identified by your Trust as requiring safeguarding measures as a result of CSE between the years 2010 and 2024.

This should not exceed any cost limits you may have but should you, for whatever reason, decide that it does, the please proceed with parts a – c.

(1) Has your Trust procured any pancreatic enzyme replacement therapy (PERT) products from overseas suppliers between January 2023 and present? Please respond with yes or no. If yes, please answer the following: (a) Which countries were these products sourced from? (b) How many ‘special order’ prescriptions for these products have been dispensed? (c) What percentage of the local demand has been covered by these overseas products?

I would like to submit an FOI request for the following data for Gloucestershire Health and Care NHS Foundation Trust:
• The number of patients treated for Dravet syndrome in 2024, ideally separated by month, or quarter
o Patient numbers segmented by age:
 0-3 years old
 4-8 years old
 9-18 years old
 18 years+
• The number of patients treated for Dravet syndrome in 2025, ideally separated by month, or quarter
o Patient numbers segmented by age:
 0-3 years old
 4-8 years old
 9-18 years old
 18 years+
• The number of patients treated for Lennox-Gastaut syndrome in 2024, ideally separated by month, or quarter
o Patient numbers segmented by age:
 0-3 years old
 4-8 years old
 9-18 years old
 18 years+
• The number of patients treated for Lennox-Gastaut syndrome in 2025, ideally separated by month, or quarter
o Patient numbers segmented by age:
 0-3 years old
 4-8 years old
 9-18 years old
 18 years+
• The above data separated by treatment, focusing on the following treatments:
o fenfluramine
o sodium valproate
o stiripentol
o clobazam
o cannabidiol
o levetiracetam
o topiramate
o potassium bromide
o Other treatments
 carbamazepine
 gabapentin
 lacosamide
 lamotrigine
 oxcarbazepine
 phenobarbital
 pregabalin
 tiagabine
 vigabatrin
 rufinamide
• Numbers of patients moving from one specific treatment to another e.g. fenfluramide gains from cannabidiol, sodium valproate losses to cannabidiol
• Alternatively, just the numbers of patients on each treatment for each month/quarter will be able to show how the numbers on each treatment are changing

Under the Freedom of Information Act 2000, I would be grateful if you could provide the following information:
1. Adherence to National Guidelines
Does your Trust currently follow any of the following national guidelines for the treatment and management of Overactive Bladder (OAB)? Please indicate “Yes” or “No” for each of the following:
a) NICE Interventional Procedure Guidance on sacral nerve stimulation for urge incontinence and urgency-frequency (IPG64)
b) NICE Clinical Guideline on Urinary Incontinence in Women (CG171)
c) NICE Clinical Guideline on Lower Urinary Tract Symptoms in Men (CG97)
d) Any NHS England-issued clinical guidelines related to OAB management
2. Locally Adopted Guidelines
For any of the above guidelines that your Trust follows, please provide the title, version number, and date of the current guidance or policy document in use.
3. Local Protocols or Deviations
If your Trust does not follow one or more of the national guidelines listed above, or has developed local clinical pathways or protocols for the management of OAB, please provide a copy of the relevant local policy or a summary of the key differences compared to national guidance.

Under the Freedom of Information Act 2000, I would like to request the following information:
1. For each of the last five years (or as many years as data is available), please provide:
o The total number of patients recorded on the urgent referral cancer treatment pathway.
o The number of these patients whose waiting time was stopped due to an enabling treatment, as defined in the National Cancer Waiting Times Monitoring Dataset Guidance.
2. If available without exceeding cost limits, please also provide a breakdown by:
o Type of enabling treatment used (e.g., stent, dental treatment, or any others as set out in National Cancer Waiting Times Monitoring Dataset Guidance)

Please can you provide the following:

By site location(s) within the trust:

Do you have a Decontamination Lead(s)?
What is their name(s), and what is their NHS email address?

Do you have an Infection Control Lead(s)?
What is their name(s), and what is their NHS email address?

Do you have a Sterile Services Manager(s)?
What is their name(s), and what is their NHS email address?

Do you have an Endoscopy Decontamination Manager(s)?
What is their name(s), and what is their NHS email address?

Do you have an Estates Manager(s) in charge of Decontamination Equipment Validation?
What is their name(s), and what is their NHS email address?

I am submitting this request, on behalf of myself, under the Freedom of Information Act and the Code of Practice on Openness in the NHS. Please confirm the Trust holds the following data, and where it is held please provide the data. Please use the attached spreadsheet if possible.

1. Does your trust provide a chronic pain service? (Yes/No)
If no, this is the end of our request.

If yes, and the service is consultant-led, please provide:
2. Please confirm that the Trust submits RTT data for this service (yes/no)
3. Please confirm that the Trust submits WLMDS data for this service (yes/no)
4. Please supply the Trust’s RTT submission for every month between April 2024 and April 2025 (inclusive), but please only show data for TFC 191 – Pain Management. This data is available in the public domain but it is supplied aggregated with other specialities in category: ‘X02 – Other – Medical Services’. We are requesting it be disaggregated from this category. Please share this in the format that you have it.
5. Only if the data requested in #4 is unavailable, please provide the data requested in 5a-e for every month between April 2024 and April 2025:
5a. The number of people on the waiting list, as of the first day of the month
5b. The average waiting time in weeks
5c. The distribution of waiting times, as of the first day of the month (see suggested breakdown in the attached spreadsheet)
5d. Number of clock starts during the month
5e. Number of clock stops during the month for treatment, broken down by reason
5f. Number of clock stops during the month for non-treatment, broken down by reason
6. The average time between clock start and an interventional pain procedure being performed, in weeks
7. Please provide the Trust definitions used for Pain Management services for:
7a. Clock starts (e.g. referral received, referral received and validated, etc.)
7b. Clock stops for treatment (e.g. first appointment, advice given, information provided, etc.)
7c. Clock stops for non-treatment (please provide breakdown)

If yes, and the service is not consultant-led, please provide:
8. What is the clinician’s role who holds overall clinical responsibility, including governance, outcomes and quality, for the service (e.g. specialist nurse, clinical psychologist, other)? We are requesting the person’s position rather than any personal information.
9. Does the service provide interventional pain procedures, such as injections? (Yes/No)
9a. If yes, please provide the clinician’s role that performs them (e.g. consultant in pain medicine)? We are requesting the person’s position rather than any personal information.
9b. If no, where do you refer patients requiring interventional pain procedures to?
10. Please provide the following data for the non-consultant-led Pain Management service for every month between April 2024 and April 2025 (inclusive):
10a. The number of people on the waiting list at the first day of the month
10b. The average waiting time in weeks
10c. The distribution of waiting times, as of the first day of the month (see suggested breakdown in the attached spreadsheet)
10d. The number of new referrals during the month
10e. The number of patients who started treatment during the month (i.e. had their first appointment)
10f. The number of patients discharged without treatment (i.e. rejected referrals)