Dear Sir/Madam,
I am writing to request information under the Freedom of Information Act 2000 regarding individuals with young onset dementia (defined as individuals of any age who first experienced symptoms of dementia under the age of 65 and then received a formal diagnosis) within your local authority area.
Please provide the following information, using the most recent available data (preferably as of 14 April 2026 where possible).
Where data specific to young onset dementia as defined above is not held, please provide the closest available proxy (for example, individuals under 65 with a dementia diagnosis and note the proxy that has been used).
Questions
• The number of individuals who were diagnosed with dementia under the age of 65 currently under the care of your services.
• The number of individuals under the age of 65 diagnosed with dementia within the most recent 12 months of validated data.
• The number of individuals who were under the age of 65 when diagnosed with dementia who were detained under the Mental Health Act in the last 12 months (if recorded).
• The number of individuals who were diagnosed with dementia under the age of 65 currently receiving Section 117 aftercare (if recorded).
• The number of individuals who were diagnosed with dementia under the age of 65 currently:
o Receiving community-based support
o Admitted to inpatient mental health settings
• The number of individuals under the age of 65 with dementia who have experienced a delayed discharge from inpatient settings in the last 12 months (if recorded).
• Does your organisation routinely record young onset dementia as a distinct category within its data systems? (Yes/No)
If the requested information is not held in the exact format above, please provide the closest available data.
If any part of this request exceeds cost limits, please provide advice and assistance to refine the request.
Please let me know if you have any questions.
Kind regards,

