I would be grateful if you could please answer the following questions with regards to treatment of spinal muscular atrophy:
1. Within your Trust/ Health Board, where are patients (aged 2yrs +) with a diagnosis of Spinal Muscular Atrophy referred to for treatment?
2. How many patients with Spinal Muscular Atrophy have been referred in:
A. The last 12 months? (or the latest 12 months of data you have available)
B. The last 5 years?
Could you please split this out into SMA type if possible ( Type 0, 1, 2, 3, 4) – (see attached ICD-10 codes)
3. If your Trust/ Health Board receives referrals, where are these referrals made from?
4. How many patients return to local care for continued treatment once referred to a specialist centre?
5. If you have a treating centre for Spinal Muscular Atrophy in your trust, what is the average length of stay (or annual bed days) of patients being treated?
If you are unable to answer all of these questions, please provide answers to those that are possible to answer. Thank you for taking the time to look into this request.

